Non-Communicable Diseases is the GLOBAL PRIORITY

Respiratory Non-Communicable Diseases is representing huge part of all chronic diseases. The impact of Respiratory Non-Communicable Diseases, also can be increased by well known link between COPD and cardiovascular diseases and metabolic syndrome. 

United Nations General Assembly voted unanimously last year to support and which called for the Summit on Non-Communicable Diseases to be convened in September 2011.  Summit on Non-Communicable Diseases will act as a global voice of all member organizations and individuals with non-communicable diseases.

The well known promoter of the Non-Communicable Diseases is Lance Armstrong. You also can sign petition.  
We have the power to save millions of lives.    

     Only 48 DAYS left till the United Nations Summit on Non-Communicable Diseases.

RESPIRATORY DECADE suggests working together on common aim: to help people with Non-Communicable Diseases and to prevent the increase of these diseases in the world by simple interventions on tobacco, salt, diets, alcohol!

WINNER OF U-BIOPRED ASTHMA ART CONTEST 2011

Dear Respiratory Friends, we wrote earlier about U-BIOPRED project and U-BIOPRED Asthma Art Contest 2011.

The art contest is part of a European-wide project called U-BIOPRED - Unbiased BIOmarkers in PREDiction of respiratory disease outcomes.

Marije Kootstra from The Netherlands won the competition and will be presented with her award at the European Respiratory Society  Amsterdam Congress Opening Ceremony on September 24, 2011. 

Congresses

European Respiratory Congress 2011  

 

 

European Respiratory Society 2011 Annual Congress in Amsterdam will be the largest and the greatest Respiratory event of this year! Program of the Congress is very variable: there are Educational and Scientific parts, also will be organized special exams HERMES: European examinations in Adult respiratory medicine and in Paediatric respiratory medicine.

 

  

ACCP 2011

 

Recognized around the world as the authority in clinical chest medicine, CHEST 2011 will feature a learning program in pulmonary, critical care, and sleep medicine. Essential updates on patient care and practice management strategies will keep you at the forefront of chest medicine, while additional learning opportunities, available in the Clinical Resource Center and throughout the meeting, will complement your knowledge and skills to provide a fully integrated education experience.

 

 

ATS 2012 

 

The 2012 ATS International Conference will be held May 18-23 in San Francisco California. 

Societies

With members in over 100 countries, the European Respiratory Society (ERS) aims to alleviate suffering from respiratory disease and to promote lung health through research, knowledge sharing, medical and public education.

As the global leader in providing education in cardiopulmonary, critical care, and sleep medicine, the ACCP will promote diversity to optimize health, advance patient care, and support research while fostering health equity.

The roots of the American Thoracic Society reach back to 1905, when a small group of physicians decided that the best way to improve care for tuberculosis patients was to share their experiences and discoveries. Today, the ATS has grown into an international society with more than 15,000 members.

The ERS COPD Audit is a study which will change guidelines

COPD audit team announced that the 13 participating countries have completed 16.024 clinical and 420 hospital data. In total 19.446 clinical cases have been collected but 3.420 cases had to be withdrawn for different reasons like misdiagnose or incompleteness. 

The Data Analysis team of this COPD Audit has started the database cleaning process which will be followed by the descriptive analysis. COPD audit team aim to present the first preliminary results at the annual congress of the European Respiratory Society, Amsterdam 25 - 28 September.

Initial analysis of the COPD Audit results already demonstrates considerable differences in the organization and delivery of care between European hospitals and countries. Outcomes for patients suggest there remains much to be done to reach the evidence based standards advised in guidelines.

Who is that woman? You might have thought looking at the COPD Audit website or other promotional materials. The 'face of the COPD Audit' is Beatrice Hirsch, originally from South Africa, now living in Toronto (Canada). She witnessed, first hand, the rise of Nelson Mandela.

Beatrice has been diagnosed with chronic bronchitis for about 30 years. She was a smoker. At that time she didn't think something was wrong with her lungs. Smoking was a thing to do among people who were part of the "in" crowd; everybody smoked back then. Beatrice was extremely overweight and therefore she assumed her lack of breath was because of her weight. Now she knows better.

At present Beatrice is a volunteer in a hospital and meets with people who have recently been diagnosed with COPD. She tries to show them that life goes on, that it is possible to live quite well with COPD. Still there is one thing she misses the most, and that is dancing. She loved to dance.

Preliminary results of the COPD Audit will be launched following sessions during the ERS Annual Congress (24-28 September 2011 - Amsterdam):

Sunday 25 Sept. 10:45-12:45 - Room Emerald: Diagnosis of COPD exacerbations on hospital admission

Sunday 25 Sept. 13:00-14:30 - Room 4.1: Optimizing healthcare for COPD across Europe

Wednesday 28 Sept. 10:45-12:45 - Room Forum: Provision of non-pharmacological treatment options for COPD patients in 13 European countries

Moreover you can discuss COPD care and auditing face-to-face with the COPD Audit Steering Board during the 'Meet the Experts' session, Monday 26 Sept. 13:00-14:00 - ERS stand A.01

For more information and pre-ordering the official COPD Audit report, please visit the ERS stand A.01

International team of ERS COPD Audit is doing great job for improvement of care of all COPD patients. ERS COPD Audit will help to respiratory specialists to make their work more efficient and help to breathe easier COPD patients! As a result of this huge multinational study will be elaboration and updating of COPD Guidelines!

Earth is no smoking space

This year, the tobacco epidemic will kill nearly six million people. More than five million of them will be users and ex-users of smoked and smokeless tobacco and more than 600 000 will be nonsmokers who were exposed to tobacco smoke. By 2030, tobacco could kill eight million people a year. Tobacco use is one of the biggest contributors to the noncommunicable diseases epidemic, which includes heart disease, stroke, cancers and emphysema and accounts for 63% of deaths.

Dr. Thomas Frieden, Director of the Centers for Disease Control and Prevention (CDC), offered his vision for the future of global tobacco control efforts.

GLOBAL TOBACCO CONTROL CAN AND SHOULD BE THE LEAD ENGINE IN THE RESOLUTION OF NON-COMMUNICABLE DISEASE CRISIS!

RARE inspirational story

RARE follows one extraordinary mother in a race against time  to cure her daughter's genetic disease. When Donna Appell learned that her infant daughter Ashley had an extremely rare genetic disease that would kill her in thirty years, she set out to track down every person in the world with Hermansky Pudlak Syndrome. Now, twenty years later, RARE follows Donna and her advocacy group of hundreds of patients in a race against time to fill a clinical trial that could save her daughter's life. A new documentary was created by Stanford filmakers Maren Grainger-Monsen MD, director of the Program of Bioethics and Film and Nicole Newnham.

click on picture and watch RARE trailer      

Today at 6 p.m. will take place free screening of the film RARE in the Clark Center Auditorium, Stanford University, Stanford, California, USA.  

Hermansky-Pudlak syndrome (HPS) is a rare group of autosomal recessive diseases whose manifestations include oculocutaneous albinism, bleeding, and lysosomal ceroid storage. Its etiology has been related to defects in 7 genes: HPS1, HPS2 (AP3B1), HPS3, HPS4, HPS5, HPS6, and HPS7. Hermansky-Pudlak syndrome was first noted in 1959 by Hermansky and Pudlak, who described 2 unrelated persons with albinism with lifelong bleeding tendencies and peculiar pigmented reticular cells in the bone marrow as well as in biopsy samples of the lymph node and the liver. Pulmonary fibrosis, inflammatory bowel disease, and kidney disease are all symptoms linked to ceroid accumulation in the cells of these organs.

For gathering and dissemination of information about Hermansky-Pudlak syndrome, for promotion of  awareness and research, and for support for all patients with Hermansky-Pudlak syndrome was created in USA The Hermansky-Pudlak Syndrome Network Inc.

The Hermansky-Pudlak Syndrome Network Inc. is a not for profit support group for people and families dealing with Hermansky-Pudlak Syndrome (HPS) and related disorders such as Chediak Higashi Syndrome.  The HPS Network was founded in 1992 and incorporated in 1995.