Friday, September 27, 2013

Idiopathic Pulmonary Fibrosis World Week 2013

This week is Idiopathic Pulmonary Fibrosis World Week 2013!!!

Join IPF Global campaign on www.ipfworld.org!!!

MISSION:

  • Creating a national and international network of people working to support patients with Idiopathic Pulmonary Fibrosis.
  • Developing a map of the Centers of Excellence in the diagnosis and treatment of IPF.
  • Raising awareness, inform, train, guide stakeholders towards this social emergency.
  • Offering support and tools to patients and their families to cope better with this disease.
  • Promoting a culture of “donation” in collaboration with the organ donors associations.
  • Promoting social awareness and sensitivity towards the dangers of smoking in collaboration with the Anti-Smoking Centers.
  • Stimulating awareness on the voluntary sector, with particular reference to the needs of the rare disease patients.
  • Promoting the knowledge on the new frontiers of biology, medicine, social sciences, psychology, analysis, law, economics, communication, etc. regarding IPF.

"BREATH OF HOPE" 


Share and spread the video of IPF World Week 2013. It was shot in Croatia during a meeting of the associations active in the field of suffering from idiopathic pulmonary fibrosis and in Italy, Modena. People who participated in the campaign are patients, family members, physicians, medical students, all convinced that sharing is the shortest way to get effective goals. 
Together we can fight IPF!!!

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