Today is #RareDiseaseDay 2017! Today, with events taking place in over 90 countries all around the world, we hope to raise more awareness than ever for rare diseases!
With the theme of research,
and the slogan, 'With research, the possibilities are limitless',
#RareDiseaseDay 2017 is an opportunity to call on all researchers,
universities, students, companies, policymakers and clinicians to do
more research and to make them aware of the importance of research for
the rare disease community.
This year's Rare Disease Day video,
which has been viewed over a hundred thousand times and translated into
over 30 languages, draws a parallel with a routine that many of us go
through multiple times a day - searching for an answer on the internet.
The video highlights how isolating it is when you search on the internet
but receive the response 'your search had no results'. It also
highlights the hope and promise that comes with additional research into
rare diseases, something that must be continuously strived for.
A BRAND NEW digital magazine giving a voice to
patients affected by RARE conditions and the charities that represent
and support them.
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