Tuesday, February 19, 2013

Rare Disorders without Border: 28 February 2013

Dear Respiratory Friends we are happy to support World Rare Diseases 2013!
The sixth Rare Disease Day takes place on 28 February 2013. This year's slogan "Rare Disorders without Borders" emphasises the need for international cooperation. Join an activity taking place near you to demonstrate global solidarity. Let's go beyond borders for rare disorders. Show your solidarity today!

This video clip has been directed by Carlo S. Hintermann and produced by Citrullo International and Digital Room with financial support from EURORDIS and the Health Programme of the European Union.
The patients featured are members of: Associazione Italiana Sindrome di Noonan, Duchenne Parent Project and Xeroderma Pigmentosum Society
We thank them and Simona Bellagambi from the Federazione Italiana per le Malattie Rare (UNIAMO) for their invaluable contribution.
More than 20 people gave their time to this project that involved stop motion animation and live action cinematography. We also thank Mario Salvucci for the original music composed for this video. 

We are inviting you on Italian event, organized by our friend Rosalba Mele:

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