Each year on May 5, pulmonary hypertension organizations and groups around the world participate in World Pulmonary Hypertension Day activities to raise awareness of this often-misdiagnosed disease and celebrate the lives of people living with PH. World PH Day brings global attention to the importance of improving the quality of life and life expectancy of the more than 25 million people living with PH worldwide.
During the celebration of World PH Day, pulmonary hypertension organizations work to:
- Increase awareness and disseminate knowledge of the disease to facilitate early diagnosis. Early diagnosis is important in decreasing premature PH-related deaths.
- Promote access to specific healthcare and treatments that increase quality of life and life expectancy.
- Promote the concept of treating PH patients as a whole, which includes treating their physical, psychological and social issues.
- Unify international criteria for the recognition of Centers of Excellence in PH.
- Promote research that will help find the cure for pulmonary hypertension.
Members of the pulmonary hypertension community worldwide also organize and take part in a wide variety of awareness-raising events, actions and celebrations.
In 2012, a program and a scientific symposium were held in Madrid, Spain as the first World PH Day celebration. The day was officially endorsed by 22 patient associations, 10 rare and affiliated disease organizations, and 8 scientific societies.
May 5 was originally chosen as World PH Day because it is the anniversary of the first child's death in Spain from pulmonary hypertension as a result of toxic rapeseed oil more than 30 years ago. This year, the May 5 date was upheld as World PH Day by popular consensus, and events are planned worldwide.
2015 ESC/ERS Guidelines for the diagnosis and treatment of pulmonary hypertension
Guidelines summarize and evaluate all available evidence on a particular issue at the time of the writing process, with the aim of assisting health professionals in selecting the best management strategies for an individual patient with a given condition, taking into account the impact on outcome, as well as the risk–benefit ratio of particular diagnostic or therapeutic means. Guidelines and recommendations should help health professionals to make decisions in their daily practice. However, the final decisions concerning an individual patient must be made by the responsible health professional(s) in consultation with the patient and caregiver as appropriate.
Free full text of Guidelines: